Thursday, December 17, 2009

Seizures

These last few days have been really rough for Jon Felipe as his seizures have greatly increased for some unknown reason. He typically has about two seizures a month. So, when he had a seizure on Monday, we weren't very concerned. Then he had another seizure on Tuesday. Wednesday he had four seizures, include one that lasted almost four minutes. Today he had seven seizures. As you can see, we are moving in the wrong direction. Having so many seizures is scaring him and he spent the past two days glued to my side.

Many of you have let us know that you are praying for him and we are grateful. Please continue to uphold us in prayer. We do have an appointment with a neurologist on January 4. Our doctor tried to get us seen sooner in light of this increase in seizures, but was not successful. They did, however, make an appointment with another doctor at Sanford Children's in Sioux Falls for this coming Monday for us. This doctor is not a neurologist, but I have heard very good things about him and I'll be glad to have him on the team.

I'm concerned, but the docs are less so. He just had a physical on Tuesday so we know he is healthy. Seizures are not a new thing for him. These are just "break through" seizures. That is, these are happening despite the fact that he is taking a medication that he has had success with in the past. He is at the max dose of this med for his weight so the doc is not comfortable increasing his dose. It may be that we will have to add a second drug to his routine. At least, I am hoping it is an easy answer like that.

Dordt is finished for the semester so I can hang out with Jon Felipe as much as I want. I do have some grading to finish, but grades aren't due until next week. JF stayed home from school yesterday and today. We are really hoping he can make it to school tomorrow; however, I have to say that even if having so many seizures in class weren't an issue, he is so out of it from the seizures that I'm not sure how much he would learn. He and I spent the day today making the same four puzzles over and over and over. It was way more fun than grading exams.

2 comments:

  1. Hi, We're praying for Jon, and for you, and for the doctor who will see him Monday. May God give all of you the strength and patience you need to deal with this unwelcome development.
    We love you all.

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  2. wondering how Jon did today (Friday), if he could go to school and if the seizures are less frequent....hope so! Keep us updated. KP

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