Today was Maria's regular infusion day. Making sure that these infusions would continue seamlessly was one of the things I really worked on prior to our move out here. There were a few bumps in the road, but everything got taken care of and the infusion happened right on schedule. This first infusion happened in the outpatient clinic just a few blocks from here. At first, I wasn't happy about that because she has been able to have it at home for several years now. However, once we got there, I could see a lot of advantages to doing it at the clinic. It is near our house, there are two nurses who work full-time in the clinic and do all the infusions so we would always have a familiar nurse, other kids come there for their infusions (no one with MG, but at least one other kid who gets IVIG), and the schedule was far more flexible than was possible with home health care. So, during the treatment, I got a call to let me know that Maria has been approved to have the next infusion at home. Ugh - now I'll have to see if the insurance will let us continue at the clinic.
We were still able to hit the pool for a few hours this afternoon after Maria's treatment. The pool here is fabulous. There are outside pools and inside pools. There are lots of fountains and slides and things to play on both in the inside pools and in the outside pools. It isn't as amazing as the outdoor pool facility in Orland Park (the town where my parents live), but it is still a nice place to spend an afternoon. I should mention that the facility in Sioux Center is actually called the All Season Center because it also has an indoor ice rink. We happened to run into my cousin Regina while at the pool and she invited us back to her house for dinner tonight, so we enjoyed a very pleasant evening visiting with George and Regina and their girls. All in all, it was a very nice day.
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